for carers, friends and supporters

Diagnosis is a life-changing word for someone you love.

It can be hard to know how to support someone with cancer. Some people with cancer might not want help or might be resistant to help. All kinds of emotions and reactions can come up when we are faced with cancer.

For people providing care, it can be hard to ask for help. 

In this section, we share practical ways to show up for people with cancer and their carers.

  • Carers need caring for too. 

    As a carer or supporter you might experience adrenalin to keep looking after your person.

    • Burnout can happen after the adrenaline wears off and you catch-up to your feelings.

    • Some carers might be able to process their feelings during their loved ones treatment, while for others it might happen months or even years afterwards.

    • There is no right way to feel what you feel.

    At times, it might feel hard to have your own emotions around your loved-ones' cancer. Some people might feel they need to hide their feelings so they don’t burden the person they are caring for or supporting. Carers need their own support (see: community support) and ways to allow their feelings to be out in the open without feeling guilty for taking up space.

    Showing up for carers. It can be hard for carers to get enough support or the right kind of support from the people them. It can be hard to keep asking for help.

    To support carers you might: 

    • Find ways to share care with them, so it's not on a single person all the time. Sometimes someone might need to 'pass the baton' to sustain themselves and to process their emotions and experience separately from the person with cancer.

    • Offer choices about how you can help regularly so they don't have to ask. Wait to hear what’s needed. This includes after hospital treatment. See more below in five ways to help.

    • Be around for a day, morning or afternoon to help out with all the little things, offer companionship and listen. You might not ‘do’ anything but being there can help.

    • Check-in by text, calls or voice notes, even if it’s just to say you’re thinking of them. 

    • Give them time out, for example, to somewhere they like going, a massage or other self-care or self-soothing activity. 

    • Provide space for processing their experience away from the person with cancer. There can be a big process after hospital treatment, that is less about fighting the cancer and more about a person with cancer to acknowledge and begin to process what happened, the shock, grief, loss and changes.

five ways to show up for people dealing with cancer

  • Saying “just reach out if you need help” isn’t as helpful as you might think. The person with cancer and/or their carer then has to identify what they need and decide if it’s fair to ask you. That’s a lot of work. 

    Instead, offer options and wait to hear what's needed (see example of a text in Figure 1).

    Here’s some things that helped the people who worked on this resource: 

    • Having someone to sit with you at home or in hospital

    • Coming over for a morning or afternoon to hang-out and help with whatever needs doing (e.g. doing dishes, doing a load of washing, gardening, washing your hair after surgery)

    • Helping with admin tasks (for example, filling out forms for Centrelink)

    • Looking after/walking pets  

    • Helping with childcare 

    • Setting up a crowdfund

    • Sending voice notes

    • Making a playlist or movie list 

    • Setting up a group chat for support

    • Helping you prepare for an appointment 

    • Coming to appointments to write things down

    • Dropping off meals or heating up/cooking meals in their home

    Offer choices. As well as tasks, offer choices of when you can help, instead of leaving suggesting times up to the person with cancer. You might, for example, offer 3 or 4 times you’re available and ask the person to pick what works for them.

    Get permission. Sometimes what you think is useful isn't what the person needs (for example, you might want to cook but they might already have 50 lasagnes). So, offer options and wait for a reply before you show up to help in a way that doesn't help (even if your help comes from a place of kindness).

    Play to your strengths. Offer help based on the things you're good at, for example, if you're a bad cook don't subject the person to your cooking. Instead, if food is needed you could offer food vouchers, or, something else the person needs, such as doing washing or washing dishes.

  • Stick to plans. Cancer can be isolating. Having something to look forward to can make a big difference. So, cancelled plans can negatively impact mental health. If you have to cancel, try to reschedule as soon as possible. Don't leave it up to the person with cancer to re-schedule.

    Aim for consistency. Life for people with cancer and carer/s can be incredibly turbulent, so having consistent support can greatly impact how they're able to manage.

    People having cancer treatment have specific needs when they’re out in the world, that they might not be aware of until they try something. As a friend, consider how the person might feel - body, food and stimulation-wise (is their hearing sensitive? do they need a seat? where is their fatigue at?) Plans might need to change. 

    Suggest accessible hangouts. People with cancer or recovering from cancer may not be able to or want to go back to parties, nightclubs and other events. Instead, you might create accessible hang-outs such as:

    • having a picnic

    • playing games (e.g. board games, video games) 

    • having a low-energy dance party

    • doing at-home movie night or a drive-in

    If you’re not in the same city, you might: 

    • all watch the same film or tv then go on zoom to talk about it 

    • play an online game together 

    • send voice notes 

    • send something in the mail, such as a care package

    Don't leave it up to the people dealing with cancer to organise a hang-out. You could suggest a few options and leave room for the person to suggest what might work for them.

  • As time goes on, support is still needed for the person with cancer and their carer(s). 

    Even after positive results, the process isn’t over. While the person might look less sick, they may still be in treatment, still have ongoing appointments, be monitoring their symptoms and psychologically dealing with fear and anxiety. So, it helps when people acknowledge that just because the process may change it isn’t over and that their support will remain the same

    For people with cancer and carers, there can be a big process after hospital treatment, that is less about fighting the cancer and more about acknowledging what happened and beginning to the shock, grief, loss and changes to a person's lifestyle. See: after hospital treatment

    Ongoing care can look like: 

    • checking-in with a text, call or voice note  

    • offering suggestions without making assumptions about what the person needs 

    • continuing to show up to offer companionship and help around the house 

    • not asking ‘so you/they are okay now?’

  • Create space for the person to talk about what they’re experiencing without shutting them down, jumping to solutions or offering advice (unless they ask). 

    Fear can get in the way of offering care. So, try to:

    • Let them know you're there to listen
      “It’s strange when someone doesn’t want to talk about the biggest thing going on in your life.”

    • Check what the person needs (for example, someone to listen, someone to offer help/advice/suggestions, something else)

    • Be available and around 

    • Acknowledge and validate how the person feels 

    • Acknowledge when you’re not sure how to help while letting the person know you’re there for them (e.g. “I don’t know exactly what to do or so, but I want you to know I’m listening, I care and I’m going to keep showing up for you.”) 

  • Catching COVID or other illnesses is still a serious risk for people who are immunocompromised and the people who care for them.

    Keep everyone safe by:

    • noticing if you're well enough to spend time in person with someone with cancer/their carer

    • if you are unwell, checking with the person with cancer/their carer about visiting

    • doing a RAT test before visiting in-person

    • being transparent about what precautions you've taken so the person doesn't have to ask

    • be aware that if you're in big crowds or busy places close to visiting you'll have greater exposure to other illnesses - let the person you’re visiting know and they can decide if they are still comfortable with a visit.

    Don't leave it up to the person with cancer to provide tests or masks for you.

image one: an example of making suggestions and getting permission

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